Our Curse
The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.
Directed by Tomasz Śliwiński · Written by Tomasz Śliwiński
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Cast
- Tomasz Śliwiński Self
- Magda Hueckel Self
- Leo Hueckel-Śliwiński Self
Make it a double feature
2h 5m together
Our Curse
The Other F Word
A close match in mood and era.
